Sunday, August 31, 2008

It's been a while since I've posted...again! Sorry about that. Just a busy teen over here, I guess. :P Lets see whats been going on in Malyssa's world...haha...
  • School starts on Wednesday...I'm both excited, and nervous all at the same time. I'm excited because I will see everyone again, and because I'm a senior this year!! Nervous because of the anxiety problems, and...well, I really don't have any other good reasons.
  • My Cozmo has been a life saver!!! I have NEVER had numbers that looked so good! I love love loveeeee my Cozmo! =)
  • I have an appointment with a new endo on the first day of school, at 3:30. I don't know what to think about it yet. When we called the office, they warned us that he likes tight control, and that my A1c of 9.9 is unexceptable...no kidding! =/
  • My highest blood sugar for the past week has been 190! Nice, right? Haha..now how often does that happen!?

Well, thats it for right now...I will definately post soon, and tell about my school and endo experiences! :)

Ta Ta!! :P

Tuesday, August 19, 2008

A post! And some good news!!

Wow. I have been so busy lately, with school comming up, my cousins engagement party, work, SAT prep...it's pretty crazy, but it's all good. Keeps my mind off of everything. And I haven't even been able to post that my Cozmo 1800 got approved!!!! Yup. I have been hooked up since Sunday morning, and I couldn't be happier. I went with the Tropical green, and he has been dubbed Fuschia Nemo, by my friend Kiersten and my little sister Kristen. Lol. Kristen came up with the Nemo, and Kiersten with the Fuschia! :P Thats right...we are expert pump namers, who are going to write a book one day, haha...seriously...we will! :P My control has been excellent since my good friend Fuschia Nemo hooked up to my side! I haven't seen a number over 191 since Saturday night at bedtime. I knew it wasnt me!! I love love love my cozmo! Really. It's the best pump ever, and NO...it's not big!! :P Lol. But, I have been getting migranes again. Bad ones. It hurts to look at the light, and to go outside in the sun is pure torture. I don't understand why i am getting these migranes again, but its bad. I can barely hold my head up...it feels so heavy. :( Well...I am off to do my first site change on my own with the Cozmo...should be interesting. Oh, and btw...I love the Cleo 90 infusion sets!!

Sunday, August 3, 2008

I am having one of those days. You know the kind...the I can't take one more minute of Diabetes kind of days. I have been high all day. 429 has been the highest, 266 the lowest. Not fun. And going to work high...even worse. I'm just really down about it today, and I just wish it would go away. I'm getting tired of site changes, and testing my blood sugar, counting carbs, and bolusing. I think I'm getting a little burnt out with regards to my D care. I need a break. Anyways, just needed to vent a bit. I'm off to watch "Becoming Jane". I'll try to post soon.

Thursday, July 24, 2008

stressful times

  1. I have finally gotten a replacement job. I'm working at subway...not exactly what I was looking to do, but I'll take it! The people there are extremely nice, and hopefully everything will work out well. I started my training today, and I go in for more training tomorrow.
  2. I am starting to worry about college...I will be a senior in high school this september. But, what happens after!? I don't know if I'll get into a good college, or if I can afford it, or even if I will be able to handle it!!! Its really stressing me out lately, and when I'm stressed, my numbers stay HIGH! Like today. I got a HI reading for about 3 hours straight. I am so nervous about all of this!!!
  3. No news on the cozmo situation yet. We will call Smiths tomorrow to see how we are progressing. I'll update more on that tomorrow.
  4. We are getting new insurance. Oxford (NJ). People are telling me that when it comes to cgms through them, coverage is not going to happen!! UGH! I was so happy when I found out we were getting new insurance because I wanted to get a cgms...but now, who knows what will happen...maybe the Navigator will always be a dream to me...never reality, but ya never know.

Ok, I am off to bed. I had quite a day!! So until next time...

I'll be dreamin' about the Navigator, and waiting on a cure. =)

Night!!

Monday, July 21, 2008

Waiting On A Cure

  • I changed the name of my blog from Determined Diabetic to Waiting On A Cure. I personally do not like the term "diabetic." It bothers me, because it makes me feel like I am a different species alltogether, rather than human, like everyone else. I prefer to be known as a "person with diabetes," because that is exactly how to describe it. I am a person, who just so happens to have type one diabetes. Diabetes will never define who I am, because I won't let it. I am more than just my disease. Diabetes is a big part of who I am, but it's not all of it! :)
  • An update on the battle for a Cozmo: Sherry from Smiths called us today with yet another set-back. Our insurance company messed up...again. They keep thinking that we are appealing an OmniPod. I have no idea why they think this, because in the appeal letter, it specifically states the name "Cozmore Insulin Technology System." So, it looks like I still have a long wait until I get the final verdict. Oh, and what really boggles my mind, is that I have an OmniPod system...so, why would I want/need another one? Hmm...
  • My numbers...they are just not cooperating with summer activities. I guess because with work, and such an unpredictable schedule, it's a lot harder to set my basals, because my schedule does vary so much from day to day. Whereas when I'm in school, my schedule is a lot more predictable, yet still hectic!!
  • Well, thats about it for now. Just a small update on whats going on in my life.

P.S. Have you ever checked out the Children With Diabetes website...particularly the forums? Well, if you haven't, you should definately stop by. The people there are so wonderful, and always so understanding, and willing to help you through difficult times. It's a wonderful place to meet others who "get it," and for support! Ok...I'm done now... :P

http://forums.childrenwithdiabetes.com/index.php

Sunday, July 20, 2008

I havent posted in quite a while, but to tell you the truth, nothing very interesting has happened.

  • An update on my fight for a Cozmo: Insurance insists that they need 20 days to make a decision! 7 down...too many to go!!!
  • I have a problem with swimming. Haha. Whenever I go swimming, I always go high afterwards. It never fails. I have even went back on the OmniPod, just so I wouldnt miss any basal while I swim (the MM is NOT waterproof). It didnt work. Today I went swimming, and I started at 395 mg/dL. I corrected, and put a 125% basal on... When I got out, I was 265 mg/dL. UGH! That was a lot of insulin for exercise. I will have to work on that.
  • I have an endo appointment comming up in a few weeks...August 8th. Not too happy about it. I do not get along with my endo, and I think my A1c went up...A LOT!!!

Thats about all I got right now, lol. I will try to post something more interesting soon...Hopefully tomorrow!! Maybe I will hear from Smiths about the Cozmo tomorrow (that would be a miracle!!!).

Tuesday, July 1, 2008

  • Well...I have solved my blood sugar issues. I am pretty sure the OmniPod caused my problem, as it has done so in the past. So, I am on my MM again, and my numbers are back to normal...well, as normal as they get.
  • I'm still trying to get my endo to sign the appeal letter for the Cozmo. I really love the OmniPod, but its obviously not working for me. As for the MM...I would rather be on MDI. It is a great pump, but I just don't like it. That was why I switched to the OmniPod in the first place. What works for some doesnt always work for others.
  • After the pump ordeal gets situated, I will be on the loooooooooooong journey of trying to obtain coverage for a CGMS. I'm trying to decide between the Navigator and the Dexcom. Navigator will one day communicate with the Cozmo, it has a built in meter, and predictive alarms. The Dex doesnt have these features. Needless to say, I'm leaning towards the Navigator.
  • I got a call-back for an interview, so hopefully I will be hired so I can start saiving money for a car.

Well, now I'm off to bed. It was a long day. I'll update soon. :D

Malyssa